Nick took Ben to his weekly IC appointment today. Ben's platelet count went down a bit this week.... 81k. It is hard not to be disappointed and I know that Ben is quite upset. Still, not a bad number for our little man. Luckily it wasn't a huge drop so we will see what next week brings...
"The purpose of life, after all, is to live it, to taste experience to the utmost, to reach out eagerly and without fear for newer and richer experiences." - Eleanor Roosevelt
Thursday, April 2, 2020
Wednesday, April 1, 2020
Parade!
Sunday, March 29, 2020
Surprise...
Wow... it was time for lunch and Ben made his own sandwich (without being asked) while reading his book (on his phone). Small miracles... I will take it...
Saturday, March 28, 2020
Friday, March 27, 2020
Walking...
Walking has been a necessity for us this week! The boys and I go out at least a couple of times each day to walk around our block. Today they were pretending that they were protecting me from an unseen enemy and they were holding their imaginary badges in their hands...
Thursday, March 26, 2020
Update on Ben...
With all that is going on right now at the University of Iowa, Nick and I decided that Nick and Ben will be making the trip to and from Iowa City each week and Conner and I will stay home. No reason to expose Conner to anything if we don't have to. It is sad for us because we have always tried to make our weekly trip a "fun" event and couple it with going out to dinner, but that's not an option anymore! Last week, Ben was sad that we couldn't all go together, but he said he understood. At this point, Ben is continuing to go every week for his medication injection. The good news is that for the third week in a row, his platelet count has increased. This week he has 109k platelets and that is awesome! It might not be a "normal" platelet count, but he can do all the physical activity and sports he wants to with a platelet count over 100k! (Of course, he can't do anything right now because none of us can!!!) It was pretty great to get some good news this week!
Specs...
We were able to get Conner's new glasses today... before the eye doctor closes for who knows how long! They look great and Conner loves them! (And this was the only time we have gone anywhere in a week, so we were all kinda excited!)
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